dba: The Vermont CFIDS Association, Inc. a 501(c)3 private foundation Burlington, VT 05408 U.S.A. 1-802-881-3821
May 12, 2017: A Director's Statement and the film INVISIBLE.
a film by Rik Carlson and Michael Thurston
Imagine what it's like to be so sick you cannot function.
Imagine there is no known pathology for your illness, only symptoms. Imagine you are too weak to find your own voice,... and because you are silent and confused, your physician says “It's all in your head”.
Because your illness is invisible, you disappear.
INVISIBLE gives voice to a select group of Vermonters who are gravely ill, and until now, have been out of sight. You will hear first person accounts from your Vermont neighbors as they talk about living their lives with Chronic Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis, the disease with a thousand names and no known cause or cure.
You will hear the devastating impact this illness wields. Not only for those who suffer the symptoms, but for those who are left trying to understand what their loved ones are experiencing. This is a film for millions of people around the globe from your Vermont neighbors around the corner,... tenacious Vermont neighbors who struggle against unimaginable odds to make their voices heard.
They are just like us,... except they got sick,...
Chronic Fatigue Syndrome and the Politics of Disease
By Rik Carlson
Foreword by Charles Anderson M.D.
"It is truly THE best book on CFS I have ever read." Keryn Dawer
“I just finished "We're Not In Kansas Anymore.""
It was exquisite. A gem. I have so much trouble reading and comprehending, but your book was truly a joy to read and a comfort to me. You are a fantastic writer. Amazing, twisted sense of humor. And incredibly accurate in your portrayal of what the medical community has done to patients like us. I felt like I knew you after reading the book I really want ... the world (to) know about your book and movie. Both are such important works. For me, the book was a blanket of healing.”
Yours truly, Susan Bilheimer