dba: The Vermont CFIDS Association, Inc. a 501(c)3 private foundation Burlington, VT 05408 U.S.A. 1-802-881-3821
May 12, 2017: A Director's Statement and the film INVISIBLE.
INVISIBLE
a film by Rik Carlson and Michael Thurston
Imagine what it's like to be so sick you cannot function.
Imagine there is no known pathology for your illness, only symptoms. Imagine you are too weak to find your own voice,... and because you are silent and confused, your physician says “It's all in your head”.
Imagine.
Because your illness is invisible, you disappear.
INVISIBLE gives voice to a select group of Vermonters who are gravely ill, and until now, have been out of sight. You will hear first person accounts from your Vermont neighbors as they talk about living their lives with Chronic Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis, the disease with a thousand names and no known cause or cure.
You will hear the devastating impact this illness wields. Not only for those who suffer the symptoms, but for those who are left trying to understand what their loved ones are experiencing. This is a film for millions of people around the globe from your Vermont neighbors around the corner,... tenacious Vermont neighbors who struggle against unimaginable odds to make their voices heard.
They are just like us,... except they got sick,...
and they are tired of being INVISIBLE.
See the film here.
The Pig & the Python follows the post WWII “Baby Boom” generation across time. From Mouseketeers to John Kennedy, the Vietnam Era to the prosperous Reagan years, this book chronicles an active life sidelined by disease for twenty years, yet defying the odds it details a path to recovery. It’s a kiss and tell look at the CDC and NIH and follows the political history of an epidemic swept under the rug by the medical/insurance/pharmaceutical cartel endearingly referred to as Goliath. It exposes the dirty side of medicine as physicians in their own words violate the oath and choose business to healing. This narrative precedes the age of COVID and explores the tragedy of a Post Viral Syndrome. It outlines decades of political activism and paves the way for future victims to address their demise. While grim at times, academic at others, its overall sense of humor and humanity is never lost.
“I laughed so hard at your way with words. YOU are
astonishingly funny and your insightful yet benevolent
and poignant humor speaks the truth more accurately
than any other form of communication.
Keryn D.
“I couldn’t put it down.You explain how this feels better
than anything I have ever read. Thank-you, thank-you,
thank-you, I am so grateful that this story has been
told.
Julia A., PhD.
“I don’t envision any patient that would be disappointed
with (his) riveting style of writing and brash honesty…
it’s a book about nature, about love, about life…
that will both entertain and enlighten, and one
that you will want to pass on to your friends
and relatives.
Gail K.
350 Pages with 83 color photographs
34.95 plus tax
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Justifications for ME/CFS Centers of Excellence: Kenneth J. Friedman, Ph.D.
May 12, 2016 An Excellent Panel Discussion. Click on the Image:
