Burlington, VT 05408-3162
ME/CFS is a long term debilitating illness commonly denied and misdiagnosed, which in turn exacerbates the symptoms and prolongs the severity of the disease. Our goal is to foster an awareness among school nurses, so when cases are discovered, we can avert the misdiagnoses and prevent a lifetime of disease.
ImmuneDysfunction.org, dba the VT CFIDS Association, Inc. is a 501(c)3 private foundation whose purpose is to raise public awareness of ME/CFS, support and advocate for Vermonters who suffer the debilitating symptoms of this and related disorders, and facilitate the education of patients, families, healthcare providers and primary care physicians in order to validate and establish a recognized and acceptable protocol for the diagnosis and treatment of Myalgic Encephalomylitis/Chronic Fatigue Syndrome (ME/CFS).
Our activities include a medical scholarship program at the University of Vermont, an active website, attorney referrals, dissemination of information with audio and video materials, a book, a 60 minute documentary film, and now a 98 page Manual for School Nurses.
There is increasing awareness of ME/CFS in children and adolescents. It is more common in children over 10 than in younger children, though it can affect children as young as 5. 13% of youth who get Infectious Mononucleosis go on to develop ME/CFS. This illness commonly persists for many years. There is no known cure. Because it is not well known or understood by most doctors, it is thought that over 80% of people with ME/CFS are undiagnosed or misdiagnosed. When this misdiagnosis happens, patients worsen. When it happens to a child, a lifetime of infirmity is guaranteed.
We have selected articles about ME/CFS in children/adolescents and have compiled them into a manual specifically for you. These materials are supplied with permission from the following organizations;
The CFIDS Association of America, www.cfids.org dba:The Solve CFS/ME Initiative
The Organization for Fatigue & Fibromyalgia Education, (OFFER), Utah,www.offerutah.org
The International Association of CFS/ME, (IACFS/ME), www.iacfsme.org
Centers for Disease Control and Prevention, www.cdc.gov/cfs
Massachusetts CFIDS/ME & FM Association, www.MassCFIDS.org
We send you this manual to broaden your range of understanding and expand your insight into this
modern day plague. Should you have further questions or want additional materials we are pleased to be of service. Thank you for your time and courtesy.