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Continuing Medical Education (CME) Course - CFS Conference Call: February 13, 2012 Participants: Dana Brimmer, PhD, MPH – Behavioral Scientist
Notes from the call: The goal of the CDC is to improve communication with (CFS/CFIDS/ME) groups around the country. They (the CDC) understand the frustration of patients when they say, “Do you know a good Doctor?” There was a discussion that concerned the frustration over the demeaning name (CFS) and a recognition of the life altering results that occur because of the profound ambiguity associated with that name. When we referenced the NIH now using ME/CFS it was made clear that ME and CFS are not the same entity, that there is a problem with identifying a viral etiology, and that they cannot recommend anti-viral treatments. In reference to CBT and GET which are featured prominently in the website and “Toolkit”, they stated that they are “just part of symptom management” and are “management strategies”, not “Cures”. They are in the process of clarifying the CDC web site. They will present provider education courses through “Medscape” in March. They will present Continuing Education Courses (CME's) on diagnosis and management and on sleep on the web site in June or July. They will present a standardized patient program to train medical students in the fall. They work with the most respected clinicians in the field and referenced Anthony Komaroff, Lucinda Bateman, Nancy Klimas and Charles Lapp. There are upgrades to the Toolkit coming. These are all positive approaches to to a difficult problem. We at the VT CFIDS Association look forward to announcing, presenting and responding to these upcoming programs and to increasing the legitimacy and support so desperately needed with this disease. We look forward to working with the CDC. Follow up: May 21, 2012 Continuing Medical Education Course: Dear Rik,
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