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I would like to develop an index for the IACFS/ME Primer:

I think a Primer index would be very helpful for both healthcare providers and patients alike who seek specific information that may be contained in the document.

Much to my surprise, it appears that the best way to generate an index is the old-fashioned way: read the work, and write down the terms and concepts.

Clearly, I can do this; I will do this. But I am certain that the more people who make the effort, the more complete the final product (index) will be.

If you have individuals in your organization willing to take on this project (knowing that others are doing so as well), or if your organization wishes to take on the project as a a group project, I would be grateful.

Hopefully, we can all agree that we want the Primer to be as useful and as accessible as possible.

If I could have the lists of terms and concepts, in alphabetical order by October 1, I'll take it from there.

Many thanks.


Kenneth J. Friedman, Ph.D.
Treasurer, IACFS/ME
Director of Public Policy, P.A.N.D.O.R.A., Inc.
Board Member, NJCFSA
Board Member, VT CFIDS
Associate Professor of Pharmacology and Physiology, New Jersey Medical School (retired)