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This is a story and an effort spearheded by P.A.N.D.O.R.A with a Follow up to this letter.åÊåÊåÊåÊåÊSend a Card to Ryan Hi Everyone, I am sending to every organization listed and to individuals as well who may or may not be listed. Feel free to forward to others too. All I need is a confirmation e-mail that the organization and the individual is on board. I made the letter quite simple and to the point. But obviously since I am asking you to sign off your input is appreciated. In addition, if any of the organizations prefer to write on its own letterhead and with its own text.. Please do so and let me know too. The impact will be just as strong! The Honorable Bev Perdue Dear Governor Perdue: We are writing to you in reference to the situation of the Baldwin family and more specifically of Ryan Michael Baldwin, a young child, from Black Mountain, Buncombe County, North Carolina. Ryan is medically disabled and carries a diagnosis of CFS (2004), severe autonomic dysfunction (2005), a progressive heart conduction system block (LBBB) with right axis deviation (2008), and Mitochondrial disease (2008). He has been to Johns Hopkins Despite these serous confirmed medical diagnostics and wonderful care from his parents ‰¥ã Lisa and Rodney Baldwin, Buncombe County Department of Social Services (DSS) has charged his parents under the ‰¥þFictitious Disorder by Proxy‰¥ÿand has not allowed them visitations or any contact with their son. Since this is a serious charge to be levied against any family or individual, and we are cognizant of the mission and great responsibility that the office of Ms. Amanda Stone has in order to ensure the safety of children in Buncombe County. But, we are also cognizant of the serious fact that the Buncombe County DSS does not have access to the scientific body of medical knowledge that entails in the overall diagnosis of an individual suffering with chronic fatigue syndrome (CFS) also known as chronic fatigue immune-dysfunction syndrome, CFIDS and also known in Europe and other countries as myalgic encephalomyelitis or encephalopathy (ME) and there is no medical personnel or provider in Buncombe county who is an expert in the neuroendocrineimmune disorders field. CFS or ME is a complex and potentially extremely disabling illness that only more recently has begun to receive more funding for research and attention towards medical care and potential treatments. The Center for Disease Control and Prevention (CDC) estimates that one million to 4 million American are stricken with this illness. The illness also has many sub-sets as it affects children, teenagers, young adults, adults and the elderly. The basis of the charges brought against the Baldwin family doesn‰¥út stack up to the medical diagnosis and medical care that over the years, the family has diligently pursued for their son Ryan. The overzealous attempt from the Buncombe County DSS is being misdirected. Its resources should be used to ensure the family has the environment it needs to ensure medical access and home schooling is being provided to Ryan. Removing him from home and placing this child in foster care is not for the best interest of the child and his family.
Therefore we urge you :
We are available to discuss this issue with anyone from your office. The undersigned below are the organizations, which respectfully urge you to take action in our request. Follow up to this letter: Click Here. Marly C. Silverman Sandi Lanford Kim McCleary Daniel Moricoli Pat Fero Cort Johnson Dr. Lucinda Bateman Shari Ferbert Yvonne Keeny
Steve Dupre Rik Carlson Peggy Walk Sharon Ostalecki
Michael Munoz
INDIVIDUALS
Kenneth Friedman, Ph.D, Associate Professor, University of New Jersey Medical School.
Herbert Hyman, MD
Leonard Jason, Ph.D
Nancy Klimas, MD
Marly (Marla) Silverman P.A.N.D.O.R.A. is the official charity of the Florida Health Expo
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